Fshd foundation. The FSH (facioscapulohumeral) Soc...

Fshd foundation. The FSH (facioscapulohumeral) Society, Inc. All-volunteer, research-focused 501 (c) (3) nonprofit. Scientists Drs. De-risking innovative projects and supporting research globally. Based in Reno, Nevada, USA, MyFSHD is a source for education about all-things-FSHD. Peter and Takako Jones, whose sole focus About Us The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular FSHD Europe unites and amplifies the voice of FSHD patients across Europe, raising awareness and interest among all stakeholders. Our grants have helped discover the genetic cause of FSHD, shown Our History The FSHD Society began in 1991, when two individuals living with FSHD, Daniel Perez and Steve Jacobsen, sat around a kitchen table determined to change the future of this disease. Learn about our vision, values, and impact on research, community, and advocacy. Our Promise No one should face FSHD alone. We will do this by removing FSHD Global has been funding groundbreaking research into FSHD since 2007. At the . We are part of a larger Accelerating FSHD research to find a cure through strategic funding. To date, the Foundation has successfully funded 64 research Facioscapulohumeral muscular dystrophy (FSHD) is a disease of skeletal muscle, causing progressive weakening and loss of muscle in both adults Discover the FSHD Society’s mission to find treatments and a cure for FSHD. Die fazioskapulohumerale Muskeldystrophie (FSHMD, FSHD, Muskeldystrophie Landouzy-Dejerine oder Landouzy-Déjérine-Syndrom) ist eine Muskelerkrankung (Myopathie). SOLVE FSHD is a venture philanthropic organization founded on the generous commitment of $100M USD from the Wilson family. Der lateinische Name der Erkrankung leitet sich von den hauptsächlich betroffenen Muskelgruppen ab: der Gesichtsmuskulatur (- fazio), der Our purpose is to solve FSHD by December 31, 2027 with a focus on all forms of this rare neuromuscular disease. The FSHD Society is dedicated to accelerating research toward treatments and a cure while supporting individuals and families every day. (FSHSI) is a voluntary, non-profit organization created to address issues and needs specifically related to facioscapulohumeral muscular dystrophy, commonly Since 1998, the FSHD Society has supported groundbreaking research on facioscapulohumeral muscular dystrophy (FSHD).


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